Latest News

Latest News

15th August 2019 / Fundraising

VHL UK Ireland & Vixstars Events – Join us for our Charity Ball on 5th October 2019

  Join us at our Charity Ball in aid of VHL and Alzheimer’s Society on 5th October 2019 at Holiday...
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22nd November 2018 / Patient Support, Research, VHL UK Ireland Charity

Annual Patient Support Group Held at Addenbrooke’s, Cambridge 17th November 2018

Over 35 patients, family members and Genetics staff attending the 2018 VHL UK/Ireland patient event at the Clinical School within...
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8th October 2018 / Patient Support

VHL Patient and Family Event – 17th Nov 2018 in Cambridge

Join us at this year’s VHL Patient Support Group – Saturday 17th November 2018, Addenbrooke’s Hospital Cambridge. – Connect with...
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29th July 2018 / Patient Support, Research

VHL Research Patient Day 30th June 2018

  On the 30th June a VHL UK/Ireland support and information meeting was held in the Bateson Centre in the...
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13th March 2018 / Fundraising

Free personalised T-shirts for VHL Star Fundraisers!

If you will be raising over £1,000 (including € and $) in a fundraising activity, you will receive a personalised...
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13th February 2018 / Research

VHL Research Presentation for Patients at Sheffield University 30th June 2018

Saturday 30th June 2018 Freek van Eeden carries out research on zebra fish (apparently they have 2 VHL genes) and the...
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27th July 2017 / Patient Support

Support Group in Glasgow 4th November 2017

On Saturday 4th November 2017, we will be holding this years Support Group in Glasgow – Connect with other patients...
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3rd April 2017 / Fundraising

VHL UK/Ireland wristbands in shop

Official Charity Silicone Wristband From our shop One size: Adult (12mm x 202mm) Two Tone Colour Effect : Debossed &...
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6th March 2017 / Patient Support, VHL UK Ireland Charity

Dublin Support Group Meeting April 3rd 2017

Dublin Support Group Meeting When: April 3rd @ 12.30-4.30 Where: Tolka Room in the Centre for Learning & Development (CLD),...
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3rd March 2017 / Fundraising

Vixstar Charity Masquerade Ball on Saturday 30th September 2017

ANNOUNCEMENT – Tickets are now on sale for this year’s Charity Masquerade Ball on Saturday 30th September 2017 at Holiday...
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27th December 2016 / VHL UK Ireland Charity

Rare Disease Day February 28th, 2017

Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure...
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18th November 2016 / Fundraising

VHL UK/Ireland Charity Christmas Cards now in stock

VHL UK/Ireland Charity Christmas Cards now in stock – order yours today! Support the charity with our bespoke Christmas Cards,...
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22nd October 2016 / Patient Support, VHL UK Ireland Charity

Second Support Group Meeting held in Saint Mary’s Hospital, Manchester, October 2016

30 people + 1 dog attended our second arranged support meeting at Saint Mary’s  Hospital, Manchester. – Connect with other...
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1st June 2016 / VHL UK Ireland Charity

The Charity is officially registered in Ireland as Registered Charity Number (RCN) 20101039

The charity submitted an application to the Ireland Charities Regulatory Authority (CRA) last year which has now been approved under...
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21st March 2016 / Donations, Fundraising, Research

New 2-year Target of £80,000

  The £40,000 fundraising goal has been reached for this financial year. We have been in touch with Prof Eamonn...
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20th March 2016 / Fundraising

Dave O’Brien + 10 others raise over £7,600 in Wicklow Goal Break 10km

  Dave O’Brien and team have raised over £7,600 at the Wicklow Goal Break 10km, a fantastic effort.
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14th November 2015 / Patient Support

First Support Group Meeting held in Guy’s Hospital, London

28 people attended our first arranged support meeting at Guy’s Hospital, London. 10.30 – Session opens – Registration – Tea...
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5th November 2015 / Fundraising

Target of Thirty Thousand Pounds – £30,000 Broken

  The VHL UK/Ireland Committee of Trustees on Aug 24th, 2015 set a new fund-raising target of £30,000 for the...
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3rd November 2015 / Fundraising

VHL UK/Ireland reaches it’s £5,000 target!

Over £5,000 has been raised for VHL UK/Ireland this year, enabling the charity to apply for registered status. All funds...
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2nd August 2015 / Fundraising

Glitz & Glamour Ball 2015 raises over £2,750 + £700 in Shop for VHL UK/Ireland!

  A Glitz & Glamour Ball raised £2,750 for the charity on Saturday 25th July 2015. The event saw over...
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22nd July 2015 / Research

£4,995 donation for a L20001 Luna FL Automated Fluorescence Cell Counter

Our £4,995 donation was spent by Eammon Maher, Head of the Department of Medical Genetics, Cambridge for a L20001 Luna...
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21st July 2015 / Donations

VHL UK Ireland Awarded £1,000 by the Community Directplus Donation Scheme run by the charity’s bank

The donation will be used for a project to fund resources for the charity such as charity boxes, literature and...
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20th July 2015 / Research

£5,000 donation towards a Biorad Zoe fluorescent imager

Our £5,000 donation was spent by Eammon Maher, Head of the Department of Medical Genetics, Cambridge towards a Biorad Zoe...
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7th July 2015 / Research

Genetic Centres in UK and Ireland to receive patient information packs

Each listed Genetic Centre that manages VHL, HLRCC and BHD patients will receive information packs, containing information cards to pass...
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1st June 2015 / Fundraising

VHL Awareness Month May 2015 is a success

VHL UK/Ireland would like to thank everyone who took part in raising awareness during VHL Awareness Month – May 2015....
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9th February 2015 / VHL UK Ireland Charity

We have gained registered charity in England & Wales 1160381

From the Charity Commission: “Registered Charity Number 1160381 VHL UK/IRELAND We are pleased to tell you that we are satisfied...
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3rd July 2014 / Fundraising

Masquerade Party raises over £3,000 for VHL UK/Ireland!

  A Masquerade Party raised over £3,000 for the charity on Friday 26th September 2014. The event saw over 230...
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