Support Groups

Support Groups

Upcoming patient and family support groups

Since VHL UK/Ireland re-launched, part of our aim is to provide support for patients and families. Support groups enable patients to meet other patients, families, genetic counsellors, researchers, consultants and more, whilst gaining valuable knowledge on various relevant topics. 


Annual Support Group & Patient Research Day

VHL UK/Ireland encourage patients and carers to come along to our annual patient support group.  We provide this day for anyone affected by any of the rare diseases to meet others engage with researchers, consultants and more.  Our aim is to provide a platform for you to gain valuable knowledge on the various topics we will cover in each group. VHL Support Group is provisionally booked each year in advance.  Please email us or use the Contact-Us Page for more information.

Patient Research Day – not a Support Group, but another great way to meet other patients and find out more about VHL-based researched. Find out more 

Previous support groups

Saturday 17th November 2018 – Addenbrooke’s Hospital, Cambridge
Saturday 4th November 2017 – Queen Elizabeth Hospital, Glasgow
Saturday 22nd October 2016 – Saint Mary’s Hospital, Manchester
Saturday 14th November 2015 – Guy’s Hospital London


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