Media awareness

Media awareness


UK and Ireland VHL, BHD and HLRCC patients new stories as featured in the media.
You can raise awareness in the media by simply talking about fundraising efforts by sharing your story.

If you have a story to add, please visit our Your Story page or email us at

The charity encourages you to share information and updates with friends and colleagues on social media
using the tags #vhlawareness #vhlwarrior #vhlawarenessmonth #vhlukireland

Remember our social media platforms are at the top of every page you visit - be sure to like our pages /
feeds on social media for the most up to date events and information.



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