VHL UK Ireland Committee Members
Graham Lovitt - Trustee, Chair
Janice Hepworth - Trustee, Co-chair, Secretary
Nat Mason - Trustee, Co-Chair, Treasurer
Roxanne Bonin - Trustee, Co-Chair, Marketing & Fundraising Officer
Gloria Proby - Trustee, Co-Chair
Amy Henson - Trustee, Social-Media Co-ordinator
Elaine Graham - Trustee
Ellen Wentworth - Trustee
John Hepworth - Trustee
Tony Horton - Trustee, Scientific Advisor
Phil Tingle - Associate, Website Administrator
1. Full Membership
This includes voting rights (one per branch / organisation) and is open to voluntary sector and charitable organisations whose primary aim is to improve the quality of life for people affected by VHL and similar genetic conditions such as BHD and HLRCC.
Membership fee is £50.00 per annum shared with the VHL Alliance
2. Associate Membership
With no voting rights, membership is open to organisations with some responsibility for the provision, commissioning or development of services for the welfare of people affected by VHL and similar genetic conditions such as BHD and HLRCC.
No membership fee.
3. Full individual membership
This includes voting rights, and is open to anyone diagnosed with VHL and similar genetic conditions such as BHD and HLRCC, or directly affected by such a diagnosis including families, friends and carers.
Membership Fee is £10.00 per person per annum shared with the VHL Alliance
Trustees and people making regular monthly donations are automatically members.