*SAVE THE DATE* Saturday 16th November 2019 we will be holding our 5th annual Patient Event in Birmingham.
The day will include information and updates from genetics counsellors, clinicians and charity members, with the opportunity to meet and connect with other patients.
Lunch and refreshments will be provided. Location will be confirmed, however is likely to be Birmingham Children’s Hospital.
Suggested donations are £10 per family or per £5 individual.
To book your place, please donate via: https://www.gofundme.com/f/vhl-patient-event-2019 and email firstname.lastname@example.org with your full name(s), address, contact telephone number and dietary requirements.